Incentives and barriers to neurological clinical research participation
12/2011
Journal Article
Authors:
Lindblad, A.S.;
Zingeser, P.;
Sismanyazici-Navaie, N.
Secondary:
Clin Investig (Lond)
Volume:
1
Pagination:
1663-1668
URL:
http://www.ncbi.nlm.nih.gov/pubmed?term=22428083
Keywords:
Clinical Trials Recruitment; focus groups; neurology; patients; physicians
Abstract:
Background: Understanding barriers and incentives to neurological research participation may improve clinical trial enrollment. Results: Telephone-based focus groups were conducted with four neurological disorder patient groups (n = 22) and one caregiver group (n = 6). A total of 14 neurologists and neurosurgeons participated in structured interviews. Topics discussed included identifying ways in which health information is gathered and attitudes toward participation in medical research. Interestingly, 86% of physicians interviewed have referred patients to clinical trials and 82% of patients expressed interest in clinical trials participation. Patients cited their primary physician as the best source of health-related information, including information about clinical trials. Barriers to patients and physicians regarding clinical trials participation included compensation. Patients expressed concern about increased visit frequency and required treatment changes. Conclusion: Patients are willing to participate in clinical trials and physicians are willing to refer patients for participation with appropriate compensation for their time and sensitivity to change in care.
